TSA-Wisconsin Board of Directors

Ellie Jarvie, MSW, LCSW: Co-Chair

Ellie has been involved with Tourette support since she was diagnosed in 1984. She has a special interest in recreational activities as a means for building resiliency, especially TS camps. I believe having TS has increased my sense of empathy and responsibility towards all people. “It's especially rewarding to be able to give back the sense of support and hope my family and I gained from involvement in TS circles." Ellie has provided foster and respite care to nearly 20 youth, and has a young adult daughter. She holds a BA in Public Communication from UW-Whitewater and a master's in social work from UW- Madison. Ellie has worked with youth program development and managed volunteer and training programs. She has supervised a variety of community programs serving adults and youth in both nonprofit ad public mental health systems. She currently works with Wisconsin Department of Health Services, Bureau of Prevention, Treatment and Recovery as the consumer engagement coordinator.

 
Patti Bani: Co-Chair/ Support Group Leader Northeast WI

Patti lives in West De Pere with her husband, Kevin, and two children, Paige (21) and Connor (14). Connor was diagnosed with TS+ when he was seven years old. Patti is the leader of the Northeast Wisconsin TS Support Group, and loves fundraising and raising awareness. Patti has planned five 5K events, and accompanies her daughter, one of Wisconsin’s Youth Ambassadors, to schools to do presentations on TS. Patti is a graduate of UW-Green Bay with a degree in Human Resource Management and is the Vice –President of Human Resources at Capital Credit Union. In her spare time, she likes to do crafts, read, and walk.

Kristin Lindbloom: Treasurer

Kristin has a 15 year old son with TS and associated disorders, and two other children with tics and associated disorders. She has been a member of the TSA Support Group of Southeast Wisconsin since its inception in early 2012, and a member of the steering committee of the Tourette Syndrome Association of Wisconsin. Her family has received tremendous support from the other families they have met through the support group, and she became involved with the formation of the chapter so that we can extend our reach and help individuals and families connect. She has learned a great deal thanks to the resources provided to us by TSA, and found great comfort in being part of a community that is familiar with the challenges of this condition.

Jeannine Shelby: Secretary and Youth Ambassador Parent

Jeannine has been a member of the Northeast Wisconsin Tourette Syndrome Support Group for the past 5 ½ years. Her family’s journey with TS began when their eldest daughter was diagnosed. The Shelby family has made it a priority to help educate as many people as they can about TS. Daughters Emily (trained in 2014) and Katie (trained in 2016) are Youth Ambassadors for the Tourette Association of America, and Jeannine’s husband Bryan has been trained to educate our teachers on the impact of TS in their students’ lives. Jeannine enjoys spending time with her family, sailing, watching the Green Bay Packers and participating in the activities of her church. She has served on the Board

 of Directors for Pilgrim Preschool and the PTO at Trinity Lutheran School.

 

Bryan Shelby: Director and Youth Ambassador Parent

Bryan is married and the proud father of two wonderful girls, Emily and Katie. He and both of his daughters are Wisconsin's TSA Youth Ambassador team. “Youth Ambassadors provide peer education to schools, community groups and the public so kids with Tourette can be accepted by peers,” Bryan says. “When Emily was diagnosed 6 years ago, and we knew nothing we set out doing research to educate ourselves, and got in touch with the wonderful NEW support group. Our family poured our hearts and souls into education and fundraising to help educate others.”

Patty Johnson: Director

Patty is the mother of 3 children. Her youngest child Jacob was diagnosed with TS at the age of 5 (he is now 13). Patty and her family have been involved with TS support groups in Wisconsin for about 5 years. Patty has been overwhelmed by the support she has received from others in the group. Patty has been inspired by Jacob who has been so proud in the uniqueness TS gives him. Through her son Patty has learned to find the positives in TS. Patty has helped her son in writing and mailing a newsletter made for TS kids by TS kids called "Tic Life." She has helped run educational booths for TS awareness, and she her husband Chris are in charge of the children s raffle baskets and kids games at the annual 5K walk as well as planning the annual Wisconsin Dells Winter getaway for TS families.


Chris Johnson: Director   

Chris lives with his family in Horicon, WI. He enjoys tennis, photography and drawing. Chris’ son Jacob was diagnosed with TS at age 5. From that time on, Chris has been a strong advocate for all kids with disabilities, especially those with TS. He has been involved with the support groups in Green Bay and Madison for the past 5 years, has helped run educational booths, and takes great pleasure in making all of the games for the annual 5K Walk. This year Chris spent countless hours making the Star Wars themed games.

Kevin Bani: Director  

Kevin in a life-long resident of West De Pere and has a 14 year old son with Tourette Syndrome and its co-morbid conditions. Kevin also has two adult daughters from his first marriage and a 21 year old daughter, Paige, who is a TAA Youth Ambassador. Kevin has been married to his wife, Patti, for 25 years. Kevin helps run the Northeast Wisconsin TS Support Group and has helped organize the TS Awareness 5K Events in De Pere. During Kevin’s spare time, he likes spending time outdoors, gardening, and hunting.

“What do we live for, if it is not to make life less difficult for each other? ”George Eliot

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